The #1 Questions I am asked About My Disability

March 22, 2017

 

When I tell people about my disability, 22q Deletion Syndrome, the first question they ask is "What is that?" So many people have not heard of this disability even though it is a very common disability. I can't tell you how many times people has asked me "what is that disability? I have never heard of it?" And that is one of the very reasons I am writing and talking about this more and more because I want people to know more about and to be aware about it. It is one of the most common disabilities out there, only second to downs syndrome in commonality. Some people who have it don't even know they have it because it is also a lot of the time an invisible disability.  One of the reasons I started this blog and my writing is to get people to become more aware of this disability. It to me is important to be aware of all disabilities and not just ignore them. We who have this disability do go through a lot even though a lot of our disabilities are not visible to the human eye. But that is where part of my faith in God comes in, actually a lot. People don't see all the struggles that we go through and we feel like we go through a lot of these battles on our own. We are not alone. God is with us, and he sees the struggles, the hurt and the pain. So we are not to become discouraged with our disability. 

 

So the #1 question I am asked about my disability is "what is that?".  The other questions people might ask are-

 

"How do you deal with your disability?" That is actually a really good question. Because for me especially as I am getting older I am noticing my disability and it's struggles a lot more. BUT I am finding ways to cope with it. Like, learning more about myself and my struggles, becoming more self aware in how I feel because sometimes I can't tell how I feel. For example, if I am nervous, or hungry or tired etc. Learning is a struggle particularly in certain subjects like math. As I go along in life I just tend to find things that are helpful and that can assist us in becoming a better version of ourselves we know we can be. It's not just by our own strength though that we can do this.  What I have learned is; when you're trying to find your true self and who God made you to be..you first have to truly find God in order to find yourself. Because with that comes happiness, peace, living the life you were meant to live, learning to cope with your disability etc. So those are the number 1 and 2 questions I am asked about my disability. 

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